aargh!

my left foot is messed up cos i hyper-extended the three middle toes backwards, forwards and backward again. so they gave me this huge i mean humounguous boot to wear and its freaken summer up here. so if i wear it i break out in a heatrash on my leg, if i dont wear it, my toes kill me cos i keep wiggling them in response to how my wheelchair bounces which is both funny and sucks at the same time. its an oxymoron i guess. rofl!

forgot...

i keep forgetting to post on here but its only cos ive been busy with knitting and not really having much to complain about. so much is still going on. i have a neighbor that wont talk to me anymore so i guess shes the only one i really have a problem with. i got sick and stopped visiting partly cos shes a heavy drinker and i dont know how to respond to her when shes drunk. i get all weirded out and leave without eating or anything.

on other subjects, im almost done with the sweater from hell. yay! im working on all the strings hanging off the insides and then i have to cast off the hood and throw it in the wash before i give it to its new owner. so far so good. then i can move on to some other much needed knitting projects. a couple hats and some socks and other things. woohoo!

i got the grumpies

this is my post to a vent at ravelry.com thought id share it here too.

man people can be so insensative. they think we need the truth. we know the truth and live with it every day damit. harumph! well along with this vent i give some advice or mabye just a different point of view on how to explain fibromyalgia and other autoimmune stuff. so i was talking to my friend the other day and noticed that she had a bruise on her thumb from -guess what? a hammer hitting it instead of the flathead on a nail…. i said to her.. that looks like it hurt. yeah she said it hurt like a sonofabitch… to which i replied imagine that pain not just in your thumb but in your knees and back and ribs and eyeballs… and imagine it never going away again. sometimes its just a mild ache… but usually its a marathon run between the pain and the nausea or hunger it causes cos your body is working overtime to compensate for the pain.. and it hurts so fucking much you wonder how you took your last breathes or if you will still be able to breathe and keep breathing. and sometimes that pain shifts to another part of your body without telling you so you fall down

cos suddenly the pain is just in your knee. your left knee and the pain is so bad you can’t walk or think about walking so you sit. and your friends think its only an excuse that you use when your tirefd but you wish you were tired or the pain would stop or drive you insane if the pain meds tont kick in soon and you cry sometimes but that just adds to the pain cos hten yhour head hurts from crying andyour sinuses are clogged so you can’t breathe or relax cos if you relax the pain takes over so you are battling it by walking anyway and fuck you to anybody that makes a joke about pain and the loss of abilities or anyone that thinks your being lazy so there. so. thats my vent and the way i tell people about what its like to be in this kind of pain all the time. its extreme but sometimes it works and they get it after that. im sorry it turned into a vent but im frustrated and tired. thank you for listening. i wish i didnt have to explain to people about being sick all winter with one thing after another. anyway thank you for listening.

you are my efamily and im happy about the fact you listen adn dont judge.