this is my post to a vent at ravelry.com thought id share it here too.
man people can be so insensative. they think we need the truth. we know the truth and live with it every day damit. harumph! well along with this vent i give some advice or mabye just a different point of view on how to explain fibromyalgia and other autoimmune stuff. so i was talking to my friend the other day and noticed that she had a bruise on her thumb from -guess what? a hammer hitting it instead of the flathead on a nail…. i said to her.. that looks like it hurt. yeah she said it hurt like a sonofabitch… to which i replied imagine that pain not just in your thumb but in your knees and back and ribs and eyeballs… and imagine it never going away again. sometimes its just a mild ache… but usually its a marathon run between the pain and the nausea or hunger it causes cos your body is working overtime to compensate for the pain.. and it hurts so fucking much you wonder how you took your last breathes or if you will still be able to breathe and keep breathing. and sometimes that pain shifts to another part of your body without telling you so you fall down
cos suddenly the pain is just in your knee. your left knee and the pain is so bad you can’t walk or think about walking so you sit. and your friends think its only an excuse that you use when your tirefd but you wish you were tired or the pain would stop or drive you insane if the pain meds tont kick in soon and you cry sometimes but that just adds to the pain cos hten yhour head hurts from crying andyour sinuses are clogged so you can’t breathe or relax cos if you relax the pain takes over so you are battling it by walking anyway and fuck you to anybody that makes a joke about pain and the loss of abilities or anyone that thinks your being lazy so there. so. thats my vent and the way i tell people about what its like to be in this kind of pain all the time. its extreme but sometimes it works and they get it after that. im sorry it turned into a vent but im frustrated and tired. thank you for listening. i wish i didnt have to explain to people about being sick all winter with one thing after another. anyway thank you for listening.
you are my efamily and im happy about the fact you listen adn dont judge.
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